Conquistando Escalones celebrates the World Rare Disease Day The Association Conquistando Escalones is formed by a family that for more than 8 generations suffers a rare disease denominated Limb-girdle Muscular Dystrophy 1F. It has recently been discovered that the genetic mutation that causes it to us, also immunizes us against HIV and with research funded by us it is sought a cure [...]

2018-02-26T21:17:02+02:00February 28th, 2017|

Emotive participation of Conquistando Escalones in the Institutional Act of FEDER in Murcia

This morning the Institutional Act of FEDER (Spanish Federation of Rare Diseases) was celebrated as a commemoration of 28F, World Day of Rare Diseases, in the plenary hall of the Caravaca City Council. The Council of Health of the region of Murcia, Encarna Guillén, the Mayor of Caravaca, José Moreno, the President of FEDER, Juan [...]

2017-03-03T16:35:14+02:00February 28th, 2017|

Conquistando Escalones gives voice to the rare diseases in the institutional act of FEDER in Murcia

The FEDER Delegation in Murcia celebrates this Tuesday, February 28, its Institutional Act for the World Day of Rare Diseases in the town of Caravaca de la Cruz.This act, framed within the campaign of visibility and sensitization, aims to transfer to society the reality of these pathologies and the necessary research that is in them. [...]

2017-02-27T13:31:33+02:00February 27th, 2017|

Conquistando Escalones, speaker and testimony of the ‘I Conference Living with a rare disease’

The association D'genes, through its regional delegation in the Northwest of Murcia, will perform next Friday February 24 at the House of Culture of Cehegín the 'I Conference Living with a rare disease', in commemoration of the World Day of Rare Diseases, which will take place on the 28th. In this act, specifically after 20:45, [...]

2018-02-26T21:17:04+02:00February 21st, 2017|

Conquistando Escalones travels to the Middle Ages

The Association Conquistando Escalones will participate next weekend in the multitudinous Medieval Market of Vila-real. For the first time, the City Council of the city gives space in this market to NGOs, which, we can freely put our stands at Bayarri square, on Saturday, February 25 from 16:00 to 22:00 and Sunday 26 from 10:00 [...]

2017-02-27T13:28:58+02:00February 20th, 2017|

Interview on Radio 24 for the International Rare Disease day

FONDAZIONE TELETHON has counted on us for the macro-campaign to raise awareness about the need for medical research, this year's theme for February 28, World Rare Disease Day. Yesterday they interviewed us on Radio 24. Thank you both.   Interview Radio 24 Here below you can listen to us  

2018-02-26T21:17:05+02:00February 19th, 2017|

Conquistando Escalones funds an Italian research on LGMD1F Muscular Dystrophy

A few days ago, thanks to funding from our association, the first phase of the research project entitled “Creation of an in vitro cell culture system to study the role of transportin 3 (TNPO3) in skeletal muscle” made by Giovanna Cenacchi, from the Laboratory of Pathology and Subcellular Diagnostics (Department of Biomedical and Neuromotor Sciences, [...]

2018-02-26T21:17:05+02:00February 17th, 2017|

Geneticists of the University of Valencia advance towards the cure of our Muscular Dystrophy

The team led by Dr.Rubén Artero, from the department of genetics at the University of Valencia, is one of the researchers of the medical alliance that seeks to achieve a cure for our 1F Limb-girdle Muscular Dystrophy. Thanks to the partners of Conquistando Escalones, the generous donors and the money raised in the events, it [...]

2017-02-19T09:57:09+02:00February 13th, 2017|

Interview on the television channel “Telefriuli” in the “march to Capriva”

During the "march of Capriva" on 29 January we were interviewed by Alessandro Bonfanti for the "Isonzo News" broadcast, broadcasted on Saturday, February 11 in the "Telefriuli"  tv channel. It was another great opportunity to raise awareness of the importance of funding scientific research on rare diseases and to publicize new projects in progress. Once [...]

2018-02-26T21:17:05+02:00February 11th, 2017|

Conquistando Escalones visits a school by surprise

Today the students of 4th of ESO of the Villa Fatima School of Burriana have received a surprise that they will never forget. After the offering of a visit to the center by José Juan Ballester González, one of its teachers and with his complicity, we recommended then the movie "Bailo por dentro", two young [...]

2017-02-12T20:18:59+02:00February 10th, 2017|
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