Quesomentero exceeds 6000€ donated to Conquistando Escalones for its daily menus

'Quesomentero Cheesebar' continues adding unstoppable in its collaboration with the Conquistando Escalones Association, with which from each of its daily menus, donates € 1 from practically its opening. We are glad to announce that after the last admission received this week by the menus of the last months, Quesomentero has raised € 6175 that [...]

2019-11-01T19:18:42+02:00October 29th, 2019|

Dr.Bjarne Udd makes a publication about a Swedish family with a mutation very similar to ours

Dr.Bjarne Udd is a Finnish researcher and neurologist, recognized worldwide as one of the foremost experts in muscular dystrophies. For some time now, he has been in contact with the research groups that are working to find a cure for our Limb-girdle Muscular Dystrophy 1F, as well as with us, showing great interest in [...]

2019-06-09T09:24:43+02:00June 3rd, 2019|

The French Association of Muscular Dystrophy (AFM-Telethon) provides € 50,000 for the research project of our illness by Prof. Giovanna Cenacchi

It is a moment of joy for us and we want to share it with all those who support us and help us day after day. The project entitled "Morphofunctional characterization of transportin 3 (TNPO3) in the pathogenesis of muscular dystrophy of waist 1F" coordinated by Professor Giovanna Cenacchi has been funded in the [...]

2019-05-13T20:19:01+02:00May 13th, 2019|

Conquistando Escalones finances € 12,000 to the University of Bologna to continue the project coordinated by Prof. Cenacchi

In these days we have made a transfer of € 12,000 to the University of Bologna to finance half of the cost of personnel to move forward with the project coordinated by Prof. Cenacchi with the title "The role of trasportin3 (TNP03) in LGMD1F". This project, which began two years ago after some preliminary [...]

2019-01-16T21:49:59+02:00January 14th, 2019|

Conference “Neuromuscular Diseases and Sla: activation of the integrated neuromuscular corporate group”

This morning we were present at the scientific meeting "Neuromuscular Diseases and Sla: activation of the integrated neuromuscular corporate group" organized by UILDM Gorizia to which we congratulate for the interesting meeting! There has been talk of scientific progress and therapeutic prospects for SMA, SLA and Duchenne and of the Neuromuscular Integrated Group activated [...]

2019-01-16T21:39:00+02:00January 12th, 2019|

1st Anniversary of the Il Limite in Cormons, characterized by solidarity

To celebrate its first anniversary, il Limite in Cormons wants to celebrate in the best way: helping the research. Demonstrating great solidarity, they decided to support our association by helping us raise funds for the treatment of our Limb-girdle Muscular Dystrophy 1F. The evening includes a buffet with responsible entry, the participants can decide the [...]

2018-03-18T20:25:48+02:00March 13th, 2018|

March to free pass open to all of 6 km to San Canzian d’Isonzo Sunday March 4, 2018

The Gorizia Marciatori Group on the occasion of the first edition of the 'Isonzo Marathon', which will take place on Sunday 4 March in San Canzian d'Isonzo, organized as a side event, the free-walking march open to all of about 6 kilometers that will start at a distance of ten minutes from the main race. [...]

2018-03-18T20:19:46+02:00February 28th, 2018|

Last appointment with In Farra Recitas

In the sixth edition of the theatrical review in Farra Recitas, Friday, February 16, 2018 there will be the last show "Che nome ghe daremo?", At the civic hall of the Municipality of Farra d'Isonzo at 20.45. Do not miss! Not only will you spend a pleasant evening but you will also contribute to carry [...]

2018-02-18T20:56:20+02:00February 13th, 2018|

In Farra Recitas VII Edition

On Friday, December 15 will begin the sixth edition of the theater festival in Farra Recitas that this year will consist on three evenings. The first Friday, December 15, 2017 with the Trigeminus with a cabaret show entitled "E je cussi e bon ve", followed Saturday, January 27 with the theater company Il Tomat of [...]

2018-02-26T21:16:49+02:00December 13th, 2017|

Conquistando Escalones finances the University of Bologna

Today we have great news to give you with a big thank you to all those who with their help and support have made it possible! This morning we made a transfer to the University of Bologna to continue in 2018 the research project "The role of Transportin 3 (TNPO3) in the LGMD1F" of prof. [...]

2017-12-03T11:55:02+02:00November 22nd, 2017|
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