The end of June and beginning of the summer, has remained, like May, very agitated for the Conquistando Escalones Association. We continue in the struggle to raise funds for research that will save the life of our family and can also cure millions around the world, given that as discovered in 2013, the genetic mutation [...]
On Sunday, June 25, for the third "Trail 32 Cippi", we organized a 7 km march open to anyone who wants to participate in our Association to raise funds for research on the cure of Muscular Dystrophy and AIDS . For more information consult the poster or the website of the MARCIATORI GORIZIA.
- Achieved € 10,740 out of the total € 40,000 required for a year - Conquistando Escalones has already paid more than € 120,000 to researchers - More than € 200,000 are needed from now and until finishing 2018 90 days ago a crowdfunding campaign was launched on the Precipita Platform (belonging to the Spanish [...]
FONDAZIONE TELETHON has counted on us for the macro-campaign to raise awareness about the need for medical research, this year's theme for February 28, World Rare Disease Day. Yesterday they interviewed us on Radio 24. Thank you both. Interview Radio 24 Here below you can listen to us
During the "march of Capriva" on 29 January we were interviewed by Alessandro Bonfanti for the "Isonzo News" broadcast, broadcasted on Saturday, February 11 in the "Telefriuli" tv channel. It was another great opportunity to raise awareness of the importance of funding scientific research on rare diseases and to publicize new projects in progress. Once [...]
Exceeded all expectations in the participation of the Sunday marathon in Capriva. It was a beautiful sunny day, perfect for a walk on the beautiful hills of Capriva, where we felt all the warmth of the participants in the sporting event, the Gruppo Marciatori Gorizia who organized it, the Mayor Daniele Sergon and the many [...]
This year Farra d'Isonzo wanted to participate in the 18th edition of the "Staffetta Telethon 24 per un'ora" of Udine with a team dedicated to our association, showing great sensitivity and solidarity towards scientific research on rare diseases and in particular towards us and our macro-project of medical research. The charity marathon has gathered [...]
- Each participant can send 3 designs until 20/12/2016 - Design a shirt that you could wear at any hour For some time, the Association Conquistando Escalones has the desire of having a shirt of its own that strongly transmits its message and, together with other charity merchandising products (as the “Sempre Endavant” ), helps [...]
Important Congress Days in Italy, where we have been and participated in. This weekend we attended to the “Brain-DM1 Day 2016" at the IRCCS Hospital San Camillo Venecia-Lido. And after the Friday’s conference, Venecia’s Lido homes, from October 22th to 25th, 2016, the Italian Neurology’s Society Congress (SIN in Italian), where will be a poster [...]
For the second time in history, on September 30th it is celebrated the Limb Girdle Muscular Dystrophy Awareness Day. The members of the Association Conquistando Escalones are all from a family where many suffer from a Limb Girdle Muscular Dystrophy, specifically the 1F type. This specific type is only suffered by our family in the [...]
