Last Friday took place at Nuestra Señora de las Maravillas de San Vicente de Paul school of Cehehín the first colloquium, “Live with a rare disease”, organized by the North-west delegation of D’Genes. On it participated the shire delegate Pascual Donate, Lara Ballesta (patient that suffers a rare disease) and our president, Antonio Marín. On this colloquium it was exposed to the audience what is a rare disease and which are its singularities, as well asthe personal experience of each speaker as a patient or affected by a rare disease’s relative. From Conquistando Escalones, we want to give thanks to D’Genes and specially to Pascual Donate for inviting us to their speak and to the welcome by Elisabeth and Puri, the colloquium coordinator and the center director respectively.

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2018-02-26T21:17:19+02:00 January 26th, 2016|

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