The association D’genes, through its regional delegation in the Northwest of Murcia, will perform next Friday February 24 at the House of Culture of Cehegín the ‘I Conference Living with a rare disease’, in commemoration of the World Day of Rare Diseases, which will take place on the 28th. In this act, specifically after 20:45, we will have the opportunity to offer our testimony. Our president Antonio Marín Sandoval, will talk about the association and what it means to live with a rare disease.

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We thank D’genes for the invitation in a day that we hope will be the first of many and help to sensitize and raise awareness about the need to investigate rare diseases, since, as the 28F motto says, “Research is our hope “.

2018-02-26T21:17:04+02:00 February 21st, 2017|

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