September 30 is World Limb-girdle Muscular Dystrophies Day. For this reason, we wanted to launch a video in which we reveal our “peculiar” way of walking which, in turn, makes us easily recognizable. The video is accompanied by the motto:
By our way of “walking” we are unmistakable.
In our “walk” towards the goal we are indestructible
Our family has Limb-girdle Muscular Dystrophy Type 1F/D2, caused by a unique genetic mutation in the world. This same mutation makes us immune against the AIDS virus. Since 2015, an international group of researchers has been searching for a cure for us and, incidentally, for millions of people.
We hope you like it and help us spread it to get more visibility.