In the collective imagery, if a disease doesn’t have evident symptoms, it seems like it is not as serious as others and we are often forced to stand this indifference that judges us. If someone doesn’t find himself on the final stages of the disease, it would seem like you are not really affected from a physical disability that seriously compromises our health and our lives.
The difficulties begin when you are a child, you see that your friends are running, jumping, playing, having fun and you can’t do nothing but stay in a corner watching them. Your head tells you to go playing and have fun, but your muscles don’t allow it.
Little by little you begin to have difficulties to climb stairs; you hold the hand railings, which you cannot climb stairs anymore, but one day this doesn’t works neither, anymore, and you need strong arms to hold you and to carry you through all the steps that life puts in front of you.
You stumble, fall down, and remain in the floor, waiting for someone to come and lift you up… Your body will be standing again, but your soul, fall by fall, will have to do every time a bigger effort to lift up.
You fall down once, twice, thousands, until you don’t have no option but to remain in a wheel chair and see life through another perspective.
It starts to be harder for you to breath, you have difficulties to swallow, you realize that your body can’t follow the rhythm of your mind, and you finally forget what means combing, get dressed, eating, go to the bathroom, clean yourself. You have no more your autonomy and your liberty.
You start to see your time as wall that runs behind you, and you can’t escape from. You are lucky to see that around you there are relatives that are still much better than you, but unfortunately there are also others that are turning off, they salute you for the last time and leave you forever. And if there’s something more difficult than see your family and friends leave you because of this disease, is to be so closed to the cure and cannot reach it because of a lack of money.