This past Saturday June 17, Conquistando Escalones was present at the National Assembly of FEDER (Spanish Federation of Rare Diseases), which approved the guidelines that will mark the work of the new year, as well as claimed the need to include the scientific investigation of rare diseases as a priority activity of patronage within the Spanish Budget Act. It was a very special day, with an exchange of experiences, sharing the struggle of the different associations face to face, with representation in the assembly of 138 of the 338 associations that form FEDER.
admin 2018-02-26T21:16:58+02:00 June 19th, 2017|
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