For the second time in history, on September 30th it is celebrated the Limb Girdle Muscular Dystrophy Awareness Day. The members of the Association Conquistando Escalones are all from a family where many suffer from a Limb Girdle Muscular Dystrophy, specifically the 1F type.
This specific type is only suffered by our family in the entire world, with a unique mutation, which make us have this disease and get affected, but at the same time gives us immunity to the AIDS virus and makes us interesting at an international level and makes us the central axis of medical investigations which seek the cure for us and for million people all over the world as well.
In order to commemorate this day, we have done a video telling how this disease affects us, which talks about the hope of a cure and the way to achieve it. We invite you to take a look at it:
We give thanks to Silvia García Broch for all the help on making this video.