It has been two and a half years since the Conquistando Escalones Association was created, joining an entire family in the investigation about the disease that they suffer (Limb-girdle Muscular Dystrophy 1F) from more than 8 generations back, and to join forces to get progress in research, after arouse the interest of the world scientific community after discovering that the genetic mutation that caused it, made affected immune to HIV.
The first international congress on the disease, advances on research and its applications to the cure of other rare diseases and HIV will be held on 22 September. It will count with the presence of the 6 research groups for which the Conquistando Escalones Association raises funds, as well as other researchers of international trajectory, including some of those that worked in the past in the discovery of the disease and the genetic mutation that causes it . At this time the association has managed to collect and pay for such investigations 160,000 € and needs about 200,000 € before the end of 2018 so that they do not stop.
This conference is receipted and sponsored by the Association of LGMD1F family (Conquistando Escalones Association), the Conselleria de Sanitat Valenciana, CIBERER, the Institute of Health Carlos III, the Institute of Health Research La Fe and the Universitat de Valencia.
You can access the official note and download the complete program in THIS LINK.