For the children’s book ‘The tournament of his life’ to become a reality, the Conquistando Escalones Association launched, on September 30, a crowdfunding campaign on the Verkami platform that, with 20 days remaining until it ends, has achieved more than half of your goal, specifically 58%.
The Conquistando Escalones Association wants ‘ El torneo de su vida’ to become a reality and become a book for the whole family in which children with disabilities are reflected, that those who do not have disabilities know how to empathize and so that parents understand how to act in such situations. For this reason, there is talk of disability and inclusiveness “without heroics or paternalism”, says the author of the book and president of the Association, Abrahán Guirao. The idea with which it works is that the book is printed at the beginning of December. In addition, another of the objectives of ‘El torneo de su vida’ is for it to become one more way to fund medical research that seeks a cure for Limb-girdle Muscular Dystrophy 1F and HIV.
The ‘El torneo de su vida’ campaign will remain active until November 8 through Verkami (https://www.verkami.com/projects/27906-el-torneo-de-suvida). However, it should be noted that for those companies that want to be sponsors, the deadline ends on October 29. Guirao recalls that the donations that are made can obtain significant tax deductions as this year they have been declared a Public Utility by the Ministry of the Interior of the Government of Spain. In this sense, we are already grateful for the sponsorship of Multiópticas Ibarra; Penya Els Flamencs grocs; Novatègia; Discesur; A Uno Imagen Digital, A&A Physiotherapy and Podiatry and Vila-real Veterinaria.
In addition to being published in Spanish, ‘El torneo de su vida’ will be translated and printed in Valencian, as well as English, Italian, Friulian, Hungarian and French – versions that will initially be in digital format – and “these translations will be thanks to disinterested work of Cristòfol Tripiana; Elena Archiles from Clap Educació Activa; Jessica Furlan; Alessio Visintin and Lucina Deponte; ARLeF (Agjenzie Regjonâl pe lenghe Furlane); Gabriella Csuhai and Juan Luis Martín ”. However, it is very likely that it will expand to more languages.
Synopsis ‘ El torneo de su vida’
“What is it like to be a child who discovers that he has a degenerative disease? What are genetic mutations? What is it like to play soccer without being able to run like other children?
‘ El torneo de su vida’ is an illustrated book that tells how its protagonist, Felipe, arrives at a new school and makes new friends while he notices that his body begins to transmit strange sensations and he begins to not be able to run or climb stairs like the rest . This illustrated book tells us about the adventures of a gang of boys and girls who create a strong bond and fight together towards an exciting purpose. It tells an exciting story about friendship, football and above all, inclusiveness. Disability away from messages of heroism or paternalism. ‘The tournament of her life’ is a pinch in the stomach of those that make you cry, laugh and in general, get excited, feel. All proceeds from its sale go to medical research on Waist Muscular Dystrophy 1F and HIV ”.
WHAT IS CONQUISTANDO ESCALONES?
The Conquistando Escalones Association is made up of those affected (all of them consanguineous) by a rare, genetic, hereditary and degenerative disease called Limb-girdle Muscular Dystrophy 1F. A few years ago it was discovered that the mutation that causes it makes them immune to HIV. The association supports the research of a large group of researchers who seek a cure for their ailment and at the same time new treatments for HIV. Said investigations are carried out in a coordinated manner in centers such as La Fe de Valencia, the Carlos III Institute of Madrid, the University of Valencia and the Vall d’Hebrón in Barcelona, as well as other international centers from Italy, the United Kingdom and Finland.