Conquistando Escalones, present at a forum of the Isabel Gemio Foundation

The president of Conquistando Escalones, Abrahán Guirao, has been one of the guests at the meeting, promoted by the Isabel Gemio Foundation, with people affected by rare diseases and their families at the Work Café Santander held on February 28, World Disease Day rare. Guirao, who has carried out his intervention remotely from his home, has spoken with the communicator and president of the Foundation about the disease that he and part of his family suffer from, Limb-Girdle Muscular Dystrophy 1F- D2. The highest representative of Conquistando Escalones has explained that, after the death of her father from this ailment, identifying her “was a beacon of hope and giving her visibility and promoting research has become the purpose of my life.” A disease that affects about a hundred people, all from the same family, of which 90% reside in Spain.

Guirao also explained to Gemio the work he does through social networks and digital platforms to publicize the Association and add support for medical research, such as the recent First Dates version through Twitch.

In his speech, shared with Anabel Domínguez, who suffers from another type of Limb-Girdle Muscular Dystrophy and is very active on networks such as Instagram or Tik Tok (@nosoyloquevesoficial), he insisted that “the disease is rare, not us”. “There are people who have it difficult for other reasons, you have to know how to adapt, that now famous term of resilience.”