The Association borns because of the necessity to spread the word about our disease and to find the funds required to carry out the investigations which not only can be the cure for the ones who suffer the Limb-girdle Muscular Dystrophy 1F but also for many other rare diseases and even take care of million people in the united path inciated on the research of a natural cure for AIDS thanks to our unusual genetic mutation.
Our goal is to sensibilize people about the importance of this investigations and to gather funds for them to keep on. There are many ways of helping us, which go, from many others, since become partner for a little trimestral fee to come to our events.
Help us to walk, help us to live. Together we can do it.